About

In March 2016, at the age of 35, I was diagnosed with Stage IV stomach cancer. Only 3% of patients live 5 years or longer after receiving this diagnosis. Most die within the first year. I have a beautiful wife and two young children. This blog chronicles my experiences with cancer and the lessons I learn along the way.

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Follow-up at MD Anderson; Good news and terrible news

Yesterday, I returned to MD Anderson Cancer Center in Houston for labs and CT scans, and this afternoon, I met with my oncologist to hear the results.

All dressed up for the CT scan

First, the good news: My second-line chemo treatment with Irinotecan and 5FU has dramatically reduced the size of my cancerous lymph nodes. Even my untrained eye was able to see a pretty significant difference between the scans from 8 weeks ago and the scans from yesterday. This is a great result, and a huge answer to prayer.

The terrible news: the cancer has spread into the muscles in my back, wrapping around my spinal cord. Per my oncologist, this is a pretty serious and urgent development that requires immediate attention. My team at MD Anderson is scrambling to secure referrals to a radiation oncologist and a neurosurgeon to try and evaluate the best course of action for treating this new localized cancer. Basically, those physicians will need to decide whether it would be best to try and zap the cancer near the spinal cord with targeted radiation, or whether it would be best to surgically remove it. Right now, my oncologist suspects that radiation will likely be the best course of action in my case.

Immediately after leaving MD Anderson, I made calls to one of my second-opinion doctors at UT Southwestern Medical Center in Dallas to get a referral for an MRI and to a radiation oncologist and neurosurgeon. Ideally, I’d like to be able to have whatever treatment is needed in Dallas, especially if it will require overnight hospital stays (surgery) or multi-day treatment (radiation will likely be a 10-day sequence).

Obviously, it was hard to hear the news of the cancer spread and the seriousness of its location near my spinal cord, but we rejoice in the effectiveness of the chemo at shrinking the other lymph node sites throughout my abdomen. We continue to trust in the goodness of God, and know that He is sovereign over all, no matter our circumstances.

Thank you to all of you who continue to pray for us so diligently. Please remember the following requests in the coming weeks:

  • That the necessary appointments will be able to happen quickly to schedule the necessary radiation or surgery to treat the cancer near my spinal cord.
  • That the Irinotecan and 5FU will continue its effectiveness at shrinking the cancerous lymph nodes and other tumors in my abdomen.
  • For Melissa, as she cares for our children and deals with the effects of cancer both in her husband and in her mom.

 

Reader Comments (12)

I always pray for you my dear friend my brother. I pray that all of this will be. Whine you someday. And you will be a bigger hero than you are today.

December 2, 2016 | Unregistered CommenterRaihan

Praying for you, Melissa, your kids, and the doctors/appointments.

December 2, 2016 | Unregistered CommenterMattsoules

We continue to keep you and your family in our prayers. I pray for strength and comfort and peace for all of you, as you continue to fight and fight. Please know that you are surrounded in prayer.

December 2, 2016 | Unregistered CommenterMark Daniel Ward

Praying constantly. Loving always.

December 2, 2016 | Unregistered CommenterCaren

Robb and Melissa. Prayers are going up for quick response and for the best treatment for this new cancer. Praying for comfort for both of you and strength and love for everyone

December 2, 2016 | Unregistered CommenterAunt Kathie

Thank you Jesus for the new treatment working. We will be praying for wisom for your Neurosurgeon & your Radiation Oncologist that we choose the best treatment for you. We will be praying for you, Melissa & your families to have peace & rest. W love you all lots.

December 2, 2016 | Unregistered CommenterRoseann Faust

Hey I'm asking our Father God for his devine miracle of healing. God bless you my soul loves you and your family. God is good thrre all things Rob. Amen. Also one day your kids will look back and read these. I would love to see even more about your love for you Children and how much daddy loves them and there mom. ❤❤❤❤

December 3, 2016 | Unregistered CommenterKina

We are praying for you both, Rob & Melissa. We appreciate your steadfast faith.

December 3, 2016 | Unregistered CommenterTeal & Laren

Praying for all that you and your family needs to get through this time! God bless you and your family!

December 3, 2016 | Unregistered CommenterKimberly Pfarr

Hang in there dude. You are in our thoughts and prayers here.

December 4, 2016 | Unregistered CommenterDan Jackson

God bless you Rob!! lots and of live and prayers!

December 4, 2016 | Unregistered Commenterlala

Rob and Melissa,

Our continued prayers for Rob and your mother Melissa. May God's healing love guide the physicians involved, and watch over each of you closely as His plan for you unfolds.

God bless.

Joe Oliveti

December 6, 2016 | Unregistered CommenterJoe Oliveti

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