About

In March 2016, at the age of 35, I was diagnosed with Stage IV stomach cancer. Only 3% of patients live 5 years or longer after receiving this diagnosis. Most die within the first year. I have a beautiful wife and two young children. This blog chronicles my experiences with cancer and the lessons I learn along the way.

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« No longer with us in body | Main | Continued decline in motor capabilities and increased paralysis »

One week into hospice care update

After several days in the recliner, it became apparent that if I could find one that was comfortable, a hospital bed would provide much more flexibility and make it easier for my caregivers to attend to my needs. Given the difficulty moving because of the tumors in my large back muscles, I was anxious about the process of transfering me from the recliner to the hospital bed. Further, given my experience with the hospital bed during my two night stay in the hospital several weeks ago, I was somewhat worried the transfer would fail and I would have to move back to the recliner.

Rob's setup in hospital bed

We are so thankful that none of my fears came true. With the help of four people, a bed sheet was placed under me in the recliner, and I was lifted without significantly changing my position as I moved from the recliner to the hospital bed. Even better, the new hospital bed from hospice is much more adjustable than the one I received in the hospital and so, on the whole, I have been much more comfortable in the hospital bed compared even to the recliner. I also know it has made caring for my specific needs much easier for Melissa, my parents, and my hospice nurses. I am so thankful that I was able to make the transfer to the hospital bed with minimal pain and that has been such an improvement over my previous circumstances.

Physically, the paralysis has continued at a rapid rate; I can no longer wiggle my toes or move my knee joints. My abdominal, chest, and back muscles are all paralyzed. My left hand can move at the wrist and fingers but have very little dexterity and strength. My right hand can still move from the elbow down and I have somewhat improved motor control compared to my left hand, but this does make using my phone and computer very difficult. Please know that I read every message, post, text, card or letter that is sent but please do not expect to see much in the way of a reply from me anymore, simply because it is so difficult to operate a keyboard now. You will have the best chance of getting a limited reply if you send me a text message, as I can dictate to my phone fairly acurately. I expect soon that I will lose complete control of both hands, and at that point it will be up to others to respond for me to those messages that require a response. If you are local here in Dallas, I still welcome seeing visitors, or you can always give me a call on Skype (robert.yale), Google Duo (708-762-9253), or a phone call or SMS (708-762-9253). If you do plan to stop by, you can call or text me for the address and we can work out a time that will be best. 

Given the complete paralysis of my chest, abdominal, and back muscles, it is becoming more difficult to breathe, as my diaphragm must do all the heavy lifting. Although my ability to interact significantly with my children has been greatly reduced, I love seeing the art work they are making and viewing pictures of them playing outside and receiving snuggles on my arm from my baby girl and my sweet little boy. Melissa continues to be a rockstar caregiver for me, our children, and my parents while they are here assisting us. I cannot imagine that I could possibly have married a more capable and loving woman. 

As you pray for us, and we are so grateful for your prayers, please remember these requests:

  • Strength, peace, and endurance for Melissa and my parents as they care for me
  • For a merciful transition and no prolonged suffering in these final days
  • For my children, as their schedules are disrupted, and as they process the loss of a parent
  • For continued joyful experiences personally, and with my family, in spite of what is happening with my body

 

 

Reader Comments (30)

December 21, 2021 | Unregistered Commenterbalihugh
December 21, 2021 | Unregistered Commenterbalihugh
December 21, 2021 | Unregistered Commenterbalihugh
December 21, 2021 | Unregistered Commenterbalihugh
December 21, 2021 | Unregistered Commenterbalihugh

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